I have to apologize for taking SO long to post! This is going to be a long post because it's been three months that I've been going to Project Walk. My experience thus far is pretty easy to summarize. And, if you're looking to expand your vocabulary, you probably don't want to hang around me because, once again, all it really takes is that ONE consonant (repeated) and ONE vowel: WOW! I have ALWAYS known I am going to heal and walk again; going to Project Walk and working with their incredibly knowledgeable athletic trainers has sped my progress ahead exorbitantly. One of the things that is HUGE and that is directly correlated to the workouts I've been doing at Project Walk is that I am sleeping the ENTIRE night through, and not getting up to pee until early morning. Not even ONCE! This is truly amazing; it's something that may sound like no big deal, but to someone with Lyme disease, this is a VERY big deal. My doctor has told me many times the first thing the spirochete responsible for Lyme attaches itself to, is the bladder itself. And then for whatever reason it sets up housekeeping in the bladder, thus is very hard to eradicate. I'm not saying my bladder is completely healed because it's definitely not, but, after I was infected with Lyme and before I got the correct diagnosis, it was not unusual for me to get up as much as three times a night, sometimes more! It was NOT good because, as I was not sleeping well, I also had zero energy during the day. Needless to say, I was not a happy camper. But now, not only am I happy, I'm also not...camping! (What can I say; once a hedonist, always a hedonist...;-)
Another really cool 'side effect' of going to Project Walk and working with the athletic trainers there is that I'm starting to be able to control any spasms I may experience in my legs. It may sound odd, but something the trainers at Project Walk actually look for and encourage IS spasms. My fiancé Jay had a really good metaphor for it; he said to think in terms of an old fashioned radio tuner. Today radios are mostly digital; you choose the station you want, push a button and you're there. With old fashioned radios you would choose your station, then TURN the dial and go through a lot of static until you get to the station you wanted. He said for me to view any spasms I may be experiencing as static. The reason the trainers like to see spasms or static at Project Walk is that is what proves to them is that your body DOES have energy. Spasms or static to them is just that; ENERGY. The station you want is somewhere on the radio, you just have to move through the
static until you find it. And I'm doing really, really well with this; pretty cool, no? Please, please, everyone...hold your applause... ;-)
I also got a really cool email the other day from a woman who saw my site and said she was inspired to rethink and question her physical therapists, who she felt were not doing things to help her improve; just to FUNCTION. She then told me she sent both the article and my website on two alternative MS/Lyme websites she frequents. How cool is that? I am NOT saying that physical therapists in general are not qualified and do not provide a useful and needed service; they most certainly do. What I'm saying is that it's like any other endeavor you're unfortunately required to do if you're on the 'receiving' end in the health care field: you have to look into what person/clinic will best suit your needs. Then try and fail, try and fail; sometimes many, many times with differing people. Trust me, I know it's a HUGE drag, especially if you're not feeling well to do this. And then you have to consider insurance, location, cost issues; and it seems the list goes on and on. In my (oh-so-humble ;-) opinion, however, the most important piece to consider is the CARE you're supposedly receiving. IS it caring? And, if not, is it worth it? If the only supposed 'care' you're receiving consists of patronization, I think it's not worth it. And I KNOW I'm treading on thin ice here. It's easy for someone to say, 'It's hard for me because not only am I sick; I'm tired' and then just give in. And, unfortunately, I feel this is the general state of our health care system today; people ARE sick and tired, and they're paying for something they're not getting. They're getting only marginal 'care', usually devoid of any 'health' attached.
I do NOT mean to sound disrespectful to doctors or therapists, or even patients who may find this condescending; forgive me. From much personal experience I know being on the 'receiving' end of the health matrix is a hugely complex, confounding puzzle; I wouldn't wish it on anyone. Unfortunately, how a person confronts and somehow manages to find their way through it has to do with many factors, many of which are out of their control. What IS in your control is your belief. The only thing I can tell ANYONE who is facing any sort of health issue or any supposedly insurmountable challenges is very simple. And, believe it or not, I can even condense it into one word: RESPECT. Respect YOURSELF. And accept nothing else from your doctors, your therapists, and even your friends! Then just be...
The lotus blossom! This is my favorite metaphor. Lotus blossoms are these beautiful, fragrant flowers you'll see in a pond or shallow lake somewhere. But these beautiful, fragrant flowers can, and will ONLY grow if they're rooted in the mud. The environs may seem dirty and messy and downright ugly, but view your circumstance as the mud. It may not look like it, but since you're rooted in it, trust you ARE growing. And it definitely may not seem like it, but you're learning from all your travails, even through all the mess. Trust you ARE going to rise above and blossom because this is true; you are. BELIEVE it, WILL it; make it happen! You may think it's sounds crazy, but you'll be surprised what trust and belief will do. Nothing truly incredible or 'unbelievable' has ever happened without it...
I'd like to close by sharing something I saw in an email I received the other day. And this is a FACT. Remember this to trust and believe, whenever you believe you can do something others feel and tell you can't be done.
On Oct. 9, 1903, the New York Times wrote:
"The flying machine which will really fly might be evolved by the combined and continuous efforts of mathematicians and mechanicians in from one million to ten million years."
On the same day, on Kill Devil Hill, N.C., in his diary, a bicycle mechanic named Orville Wright wrote:
"We unpacked rest of goods for new machine."
One to ten million years before we'll see a machine that can fly, huh? I can tell you one thing for certain; it's not going to be one to ten years before you're going to see me walk, that's for sure. You'll see me walking more around this same time next year. Actually, probably in the next six months. Mark my words...;-)